to be a scared, helpless MOM who doesn't know what's wrong with her child.As you've probably noticed, it's been way longer than normal for me not to make a post. Well, Andrew and I have had quite a rough and emotional week last week. We left our last appointment on March 4th with the impression that everything was great. I didn't realize that the tech doing the ultrasound is not experienced in reading them and diagnosing any potential issues, and that it can take a little while before the doctor reviews all the pictures in detail. That said, I went into Houston this past Monday for work and somehow had missed a call on my cell saw that I had a message. I listened to it and it was one of my doctor's nurses saying there was something she needed to talk to me about and to please call back. I immediately started to panic. Doctor's offices DO NOT CALL unless something is wrong. I anxiously call back and have to listen to the really long voicemail message at the nurses' station and then leave a message. I'm already uncomfortable with the situation and very concerned with whatever they need to talk to me about. It was about lunch time, so I headed downstairs to get something to eat even though I didn't have much of an appetitie at this point.
As I get in the elevator, of course, my phone rings and it is the nurse. She quickly jumped in to telling me that they had found something "abnormal" on my last ultrasound and starts talking about 2 instead of 3, something with the umbilical cord. I'm in an elevator, hearing something about my baby being abnormal, and I just can't really comprehend what she's telling me. It was all happening so fast, like someone just dropped a bomb on me. After what seemed like the longest elevator ride in history, I finally got off and just told her to stop and start over. She explained that the umbilical cord is supposed to have three vessels - 1 vein and 2 arteries - and our baby only had 1 vein and 1 artery. The diagnosis is called SUA, Single Umbilical Artery. They don't know why this happens. Of course this is something I have never heard of and have NO idea how serious of an issue it is. Unfortunately, this was not the nurse that I know had initially called, this one was much more clinical and not very comforting. Does she not get it that she's telling someone there is something wrong with their baby!?!?! I'm trying to ask what this means, is it serious, what are the potential complications, is there anything we can do, etc? She wasn't much help and just told me that they wanted us to go to a perinatologist (i.e. fetal medicine specialist) and have Level II ultrasound. She didn't know when this would be, but that they would call to set up an appointment....everything was just so vague. That was NO DOUBT the scariest part... I felt like I knew nothing.
I got downstairs to the cafeteria, sat down and said a little prayer and then immediately called my mom in tears, but felt like I didn't even know enough to explain to her what was wrong. I was just scared to death of the thought that something might be wrong with our precious little boy.
When I got back upstairs to my desk, I probably did the worst thing possible... I Googled '2 instead of 3 umbilical cord' because I still hadn't caught what the name of this was. All of these terrifying articles and what not came up talking about heart problems, Down Syndrome and other chromosomal abnormalities, urinary, gastrointestinal, and kidney problems, low birth weight, etc. The statistics weren't terribly comforting either. Apparently SUA is fairly common 0.5% - 2% of all babies, but the percentage of those that might have additional problems seemed to high for me to be comfortable. Then, I found all these other websites that were real moms talking about it and just about every single one of them said they had not further issues and were told it was becoming a "variation of normal." Many babies are born with SUA and they never even knew it during the pregnancy because it can often be hard to detect. Some of that was comforting, but there was no getting past the fact that there could potentially be something very serious wrong with our little guy. I didn't want to call Andrew, because I knew he would panic too. He wouldn't show it, but I knew he would be really worried. I knew I had to call him though, so I went in one of our little call rooms and attempted to explain what I had found out. Of course, he had questions, most of which I didn't have an answer to. He was very comforting, but I knew he was really scared too. He encouraged me to call back and try to get some more answers.
So, I went through the voicemail and wait drill again. Luckily, the "nice nurse" called back the next time. She was much more comforting and tried to give me as many answers as she could. She did say that she has seen this a lot and it was WAY more common for nothing further to be wrong than it was for the Level II to find something further. I was young, healthy, and had good ultrasounds up to this point, so she felt pretty good that I had nothing to worry about. She still didn't know when they would be able to get me in to the perinatologist since he was out of Houston and made rounds to Beaumont a couple times a month.
Monday through Wednesday was spent praying, crying, feeling helpless, and trying to think positive and trust that God was going to take care of us and our little guy, no matter what the outcome was. My mom e-mailed me the Serenity Prayer, which I have always loved, and Proverbs 3: 5-6. I printed them both out and taped them above my computer and found myself just reading them both over and over. I definitely didn't get much work done last week. I would find myself just staring at both during the day.
The Serenity Prayer God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.
Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;
That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
Amen. Trust in the LORD with all your heart
and lean not on your own understanding;
in all your ways acknowledge him,
and he will direct your paths.
Proverbs 3, 5-6 We still hadn't heard anything about scheduling an appointment by Wednesday morning. So, I called back and did the voicemail and wait game again. Luckily, again I got the "nice nurse" and she got me the direct contact info to scheduing lady for the perinatologist. I was able to talk to her and she too, was very comforting and said that in the 10+ years that she had worked for this doctor, that she could not remember a time when they found something more serious or at least something that was considered a major defect. She too, felt confident that we should not be worrying... plus stress is not good for momma or baby. Even with all the positive words, it's impossible to not think "what if." We knew that we were going to have and love this baby no matter what. We both have a strong faith and supportive family and friends, so even IF we did not get the news we wanted to hear, we would be okay. Of all the things that could go wrong, this is usually 'not a big deal' and they just want to monitor the baby's growth more than they normally would. I just think about parents that get truly devastating news, I just can't even imagine what that feels like. I think that my doctor's office had passed on that I was very anxious and had been crying and what not... but, I think it helped. The scheduling lady really, really wanted to get me in so that I didn't have to stress or worry any more than necessary. She thankfully took the approach that there wasn't really room in the schedule, but that she would add me anyways and they could just deal with it... AMEN! So, we were on the schedule for Thursday morning.
On Thursday morning, I had some of the nervous anxiety I had before we had the "boy or girl?" appointment, except this was not nervous excitement, it was nervous stress. I kept saying my little prayers and repeating that I was "trusting you Lord" to get us through this appointment, no matter what the outcome. I was surprisingly calmer than I thought I would be, but I just kept trying to think positive and remember all the good things the nurses had been telling me.
First, we had to register, fill out more paper work, get a little hospital wrist band (yep, that's going in the baby book). This part was good, just because I liked this lady, Wyhnonna. She had told me on Wednesday that if I was freaking out at midnight, I could call her. I like people like that. Then we had the appointment with the Genetic Counselor. This was more of an information session about SUA and some of the possible complications. She did go through our family history, which is thankfully pretty clean. She gave lots of positive comments about the odds of having something more severe, but then she also gave all these odds about Down Syndrome, etc. Considering we had already hit the jackpot and been the 0.5 - 2 out of 100 who get SUA, some of the odds she was presenting were not terribly comforting. The information sheet she gave us said that some studies estimate that between 16-45% of babies with SUA will also have other atypical findings on their ultrasound. She talked about amniocentesis and that was really the only way to rule out some of the potential severe chromosomal abnormalities (including Down Syndrom), and we made it pretty clear that it wasn't something we were going to take the risk on. To us, there was no point. We weren't going to change anything.
After that appointment, we had to wait for what seemed like forever... over an hour, almost an hour and a half is pretty close to forever... until we got in for the appointment that really mattered.
When we finally got called back, we had to wait a little more in a cold, clinical hallway. One couple came out and then another went in before it was our turn. It was a dark room with the doctor and two nurses. The nurses were whispering the whole time and way before we even got to the imaging department, I had been told to turn my phone off. I don't think this doctor liked to be disturbed. Anyways, I got up on the table and they got the paper all tucked in to my pants. Andrew was sitting next to me and I just grabbed his hand and was aleady staring at the blank screen. I just wanted this appointment to be over. I was excited to see my little guy again (since we didn't think we would be having another ultrasouned), but at the same time, seeing him meant opening ourselves up to potentially bad news. Either way, we needed to know. He doctor squirted the jelly on my belly and it was actually warm this time... usually it's freezing. Our little guy popped up on the screen and was of course moving around. He was also breech. So far he has not been the the "normal" pose for any ultrasound. Last time he was face down. I don't know what his deal is, but he must be like his daddy and not like to take pictures. Anyways, the doc started his exam from head to toe, examining everything. He was very dry and didn't really say much except stating measurements for the nurses to record. He is an older, Israeli gentleman, and very serious and "doctor-esque." I was feeling a little tense, so I started asking what things were on the screen, trying to open up the conversation a little. He went through some of the organs - brain, kidneys, "four-chambered" heart... I think Andrew and I squeezed each others hand at the exact same time when he said that. The doc never seemed alarmed by anything, which was a good sign. He stated that I was [on paper] 21 weeks 2 days, and then furthered to tell us that our little guy was actually measuring over a week ahead of schedule... which, of course, I countered with "that's a good thing, right?!?!" ... since fetal development is one of the potential risks of SUA. In a nutshell, the doctor did NOT, I repeat, did NOT find anything else abnormal other than the single artery umbilical cord. This was such a HUGE relief. All of the organs looked good and he was the size he was supposed to be (and then some). We had been told that IF an SUA baby is found to have other types of abnormalities on the ultrasound, the likelihood that the baby has a chromosome problem increases. Since he didn't, he is at NO MORE RISK than ANY OTHER BABY would be for any of these types of problems. AMEN!!! Thankfully, we are able to breathe a sigh of relief and enjoy the rest of this pregnancy. On the upside, just out of precaution, they do want to do another Level II in 6 weeks and maybe more ultrasounds at my doctor's office than they would have done, just to keep an eye on his development... this means we will get to see our baby more! YAY! :-)
Sucking his thumb:

We just feel so blessed that this SUA diagnosis does not appear to be anything mroe serious. To this point, I don't think we realized how fortunate we are to have a healthy little boy. This is definitely something that we do not take for granted. We never did, but really don't know. It's amazing how pregnancy and parenthood and be the most joyous and most scary experiences you will ever face. We celebrated with a big Mexican food lunch, including stuffed avocados... my fave!
Okay... on a lighter note, here's where we were last week - Week 21.
'Baby gulps down several ounces of amniotic fluid every day, both for hydration and nutrition and to practice swallowing and digesting. And, these days, those taste buds actually work! Studies show that after birth, babies are most interested in tastes they've already experienced through amniotic fluid. Meaning, think about what you want your future child to eat as you prepare your own lunch."
An emotionally exhausted me after our appointment:

My belly seems to be growing by the day and I have developed that little dark line that goes from your belly button down. I'm not really sure what it is or what it's called, but I had heard other pregnant people talk about it. There are definitely a number of moments during the day where my belly starts to get in the way. Bending down to pick things up or when I need to tie my shoes, for example. I feel like someone put an inner tube around my waist and it won't come off. Rolling over to switch sides while I'm sleeping or getting up out of bed are also starting to become harder. I'm having trouble picturing how these things will get done later down the road. :-) I have a feeling Andrew will be helping me a lot (more... he does a ton already).